Who We Are
Welcome to the Huntington's Disease Society of America's Upstate New York Chapter. We are a part of the HDSA's Northeast Region.
Our Mission
To improve the lives of everyone affected by Huntington's disease and their families.
Our Vision
A world free of Huntington's disease.
About HDSA
The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.
HDSA Centers of Excellence
The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research.
At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.
For the access to our nationwide database of HDSA Centers of Excellence, Support Groups, Care Facilities and Social Workers click here for our Locate Resources page.
Contact Us
HDSA Regional Development OfficersVirginia Goolkasian
PO Box 14
Chelmsford, MA 01824
p. (978) 905-5588
vgoolkasian@hdsa.org
Melinda Jensen
p. (212)-242-1968 ext: 236
e. mjensen@hdsa.org